Thursday, March 07, 2013

cardiologist update.

i brought hollis back to the cardiologist on tuesday.  they did another EKG and did an ultrasound of his heart this time (we've previously only had echocardiograms).  everything looks great!  his SVT is not presenting, and his heart function is "perfect" according to our doc, so we are thrilled.  we go back in two months this time, so that's great as well.  our doctor is moving to san antonio in may, and i am SO sad about it.  he has been really great and i get attached to people, but he assures me the other doctors in the practice are all very good and hollis will be in good hands.

he did say we will have to keep hb on the meds for his first year.  apparently, once they start, they don't like to stop.  sigh.  giving this baby medicine is a task.  i have all his meds lined up on his window sill.  in the morning, he gets heart med, probiotic, and anti-reflux.  they are all liquid and he HATES having me squirt stuff down his throat.  mostly, he spits everything back out at me.  he scrunches his face up like winston churchill and just squeezes it out of his mouth and stares at me with disdain.  i find myself blowing in his face/mouth, kind of like giving a pill to a dog.  it's pretty ridiculous.  surprisingly, he takes the meds best when he is crying.  it's so stupid to sort of want your baby to cry so that you can give them medicine, but the meds will often shoot straight back and actually make him stop crying (probably out of surprise and righteous indignation).  anyway.  at noon i only have to give heart meds.  then in the evening we do heart med, anti-reflux, and vitamin D.  sometimes i skip the vitamin D if we've had a sunny day and he and i have been outside quite a bit.  but still.  that is a LOT of stuff to be squeezing down a little man's gullet.  i'm so grateful there are meds available that clearly help our sweet boy, but it would be nice not to have to think about dosages and having a burp cloth on hand to wipe up the syrupy mess he can spew.

as an aside, we're on day three of the anti-reflux meds and they are REALLY helping, i think.  he's going to sleep so much more easily and doesn't seem agitated and uncomfortable all the time.  of course, he is still showering me with spit up a few times a day, but he's doing it without arching and crying, and that is all i need.



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